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What is ALS?

Amyotrophic lateral sclerosis (ALS), often referred to as “Lou Gehrig’s Disease,” is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed.

 

For more information and to donate to the ALS association click here: Donatealsnerves

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Families Against Neuroblastoma: Mauvember Campaign

Neuroblastoma is a cancer of the nervous system which often occurs in the abdomen and can spread to all other parts of the body including the bone, bone marrow and brain. It is an aggressive and most common form of childhood cancer, with over 100 children being diagnosed each year. Sadly there is an 80% chance of relapse and currently no relapse protocol in the UK.

Although our offices are based in Hunstanton, Norfolk, as a charity we support over 200 families nationwide through every stage of their journey. We fundraise for potentially lifesaving treatments which might not be available on the NHS as well as research, holidays, treats and wishes and many other aspects to help and support families in their fight against neuroblastoma. We also have a number of international families within our support group, who are always happy to network with us and each other.

Next month we will be launching our national campaign ‘Mauvember’. During November lots of men grow a moustache to raise awareness of male cancers but little men get cancer too! So what better way to raise awareness than to don the Neuroblastoma and FAN’s brand colour of purple! To help us spread the word and promote our cause, we would like to see and receive photos of as many people as we can, getting involved and advocating the campaign by wearing it purple. There are lots of things that can be done, some to raise funds and some just to raise awareness; wear a purple wig for a week, get everyone to wear a purple moustache, dress in purple for the day, have a purple cake sale, etc.

Also if anyone wishes to fund raise on our behalf then we would love for them to get in touch.

 

Berney 

Fundraising and Events Assistant

Families Against Neuroblastoma

Text Donate CURE94 and your amount between £1.00 – £10.00 to 70070

 

 

 

Footy 4 Harry: Sellebrity Soccer Match

 

 

On May 18th at Birmingham City Football Club
HelpHarryHelpOthers and Sellebrity are bringing you an
EXTRAVAGANZA for all the family. It's a chance to come along
with all the kids for a great day out, and to help raise money for
charity too!

There will be a family zone full to the brim with rides, food,
entertainment and exhibitions with FREE ADMISSION!

Then WITH TICKETS STARTING FROM JUST £1 FOR KIDS, you can
see all your FAVORITE STARS AND CELEBRITIES battling it out in
massive charity football match. With all your idols from TV, Music
and Sports this is a once in a lifetime chance to see your idols up
close and in person. Game kicks off at 3pm!!

So come support Harry and have a great day out for all your
friends and family, just make sure you bring your
autograph book

To more information and to get your tickets go to: http://www.sellebritysoccer.org.uk/HHHO

 

Adopt a pig

photo_pigs1

 

Adopt a Pig is a program designed to help children and their families cope as they face their greatest challenge, fighting cancer.  Proceeds benefit a variety of support services and coping mechanisms for patients and their families.

How the program works

  1. Pediatric cancer patients and survivors paint and decorate piggy banks.
  2. Sponsors adopt the piggy banks for an initial $25 fee and begin collecting donations.
  3. When each bank is full, the change inside is counted and a check is sent to Adopt a Pig.  Sponsors keep the piggy bank as a personal reminder of a child’s fight against cancer.

 

For more information go to: http://www.adoptapig.org

Twitter: https://twitter.com/AdoptAPig

 

 

Stevens Fighting Fund

Steven, a 23 year old young man, was diagnosed with a brain tumour in August 2010. His family needed 100.000 so they could fly Steven to Los Angeles, California and have an operation to remove the tumour.

They arranged to fly to LA  and thankfully the operation was a success, but they only raised 40.000 so the rest they had to borrowed it. Stevens family is now raising money so they can give  back all the money they borrowed, please lets help this family with a donation 🙂

 

For more information, go to:  http://stevensfightingfund.co.uk/about-steven/

Donate here: http://stevensfightingfund.co.uk/donate/

 

Thanks everyone!

Stand up for Harry 2013

Harry Moseley was just eleven years old when he died in October 2011 after a four-year battle against brain cancer.  During those years he raised nearly £700,000 for charity, by making and selling bracelets, public speaking and attending as many fundraising events as he possibly could.  He was, as thousands declared during his life, and thousands more have done so since his untimely death, a true inspiration.

Free meal will be provided on the night, tickets are £19.00 plus booking fee. the booking fee is being donated to the charity.

 

For more information about this event please go to:  http://www.thehighlight.co.uk/event/stand-harry-2013